GamesMMOWorld of Warcraft’A true, raw, emotional display of what our life is genuinely like'—how a documentary about a WoW player gave a vivid window into the lives of disabled gamersWhen you purchase through links on our site, we may earn an affiliate commission.Here’s how it works.
GamesMMOWorld of Warcraft’A true, raw, emotional display of what our life is genuinely like'—how a documentary about a WoW player gave a vivid window into the lives of disabled gamersWhen you purchase through links on our site, we may earn an affiliate commission.Here’s how it works.
When you purchase through links on our site, we may earn an affiliate commission.Here’s how it works.
(Image credit: Blizzard / Microsoft)
I recently had the pleasure ofinterviewing Benjamin Ree, director of The Remarkable Life of Ibelin, about his project—which follows the well-documented life of Mats ‘Ibelin’ Steen, a World of Warcraft player with Duchenne muscular dystrophy (DMD).
DMD is one of many muscular dystrophy conditions, and is considered to be one of the most severe, with a life expectancy of 20 to 30 years. Steen died in 2014, and while his parents were worried he’d led an isolated and lonely existence, the flood of support that came in from the people who knew him online proved it anything but.
One thing that sticks with me is how earnest the documentary feels. Steen was both a dear and considerate friend to the people he knew, and made a massive impact on his guildmates. But his digital life wasn’t without its dramas. If you’ve played an MMO, you’ll know things get downright spicy often—and Steen the player and Ibelin the human detective got into spats both in and out of character. Ibelin was a big flirt, even cheating on his in-character girlfriend.
I hope that we managed to portray him in a complex way.“Benjamin Ree, Director
I hope that we managed to portray him in a complex way.”
Speaking about the choice to include these elements, Ree says: “He was the best friend you could have. He was charming and funny and intelligent—at the same time, he would cheat, he would lie, he lost contact with two of his best friends, asked for forgiveness, got them back again.
“One of the reasons why he wrote the blog,” Ree says,referring to the online diarySteen kept in the last years of his life, “was because he wanted to have his friends back again. It was his way of saying ‘I’m sorry’. And while the first blog entry was about the love that he shared with Lisette from the Netherlands, he really wanted to have that friendship back again. So I hope that we managed to portray him in a complex way.”
The biggest gaming news, reviews and hardware deals
This isn’t just a hope in Ree’s mind, though. Listening to the roundtable, I was told over and over howunderstoodthose with these conditions felt while watching the film. Danielle Maycox, a gamer diagnosed with Spinal Muscular Atrophy (SMA) type two, told those in attendance that she felt like this was the first time her life was really portrayed on screen in a meaningful and accurate way:
“I am so used to seeing people portray what theythinkmy life is like, and other disabilities. Whereas this time, it was really a true, raw, emotional display of what our life is genuinely like, and it was so refreshing to see that, being the first time that I’ve ever seen it in front of me, on my screen.”
‘How can I do more?’
(Image credit: Netflix / Benjamin Ree / Blizzard)
Martin Hywood, who both works for the charity and has Limb-girdle muscular dystrophy, has helped to raise over £300,000 with his family for research into the condition since his diagnosis in 1996. The film left a lasting impression on him: “There were so many similarities, and so many things that resonated with me.
“When we’re gaming, as a disabled community, we’re sometimes better than regular people—it’s a leveller for me, playing videogames. It’s an absolute leveller. When you’re better than other people, it’s an absolutely fantastic achievement, and something to strive towards being better at consistently and constantly.”
Hywood went on to praise the film for taking on Ed Larkin, who did a bang-up job voicing Steen’s character, Ibelin. Larkin has cerebral palsy himself, and the inclusion of disabled people while telling Steen’s story meant a lot to Hywood and others.
[He was] so selfless, so utterly selfless.“Martin Hywood, Muscular Dystrophy UK
[He was] so selfless, so utterly selfless.”
“You’ll watch soap operas in this country and you’ll see someone playing a part in it as a disabled person in a wheelchair, and you know that the actor is not disabled in any way. It’s quite patronizing and insulting when you see that and hear that … [the film] is extraordinary and fantastic, and it needs to be put on a pedestal of how we go forward in the industry to make both films and videogames.”
Helping those with his condition is an ongoing process for Hywood, though, one that the film only served to light a fire under: “It felt like we were invited to Mats' funeral—and I have a brother that’s two years older than me, who lives with a muscle wasting condition, and so I see progression in him because I’m one of his carers as well. I found it extremely emotional.
“My takeaway from the film, considering everything I just said was: How can I do more? Considering all that Mats was doing, helping the people with neurodiversities and all the other things, [he was] so selfless, so utterly selfless. So I came away from that thinking: What else can I give back to society? Who else can I help?”
‘Gaming brought me to a space where I can relax’
(Image credit: Netflix / Benjamin Ree)
“What happened was six years ago, I bought a PS4, and I thought ‘oh, I can’t use the new controller’, and I decided to give up gaming then. But then my mum noticed I was getting very depressed,” Gohil explains, adding that the new controller “enabled me to continue playing for like six years—at the minute I’m struggling to use their setup, but we’re working on another way.
“[Gaming has] helped my mood, and also it’s given me the chance to become more confident through gaming and sharing my life with friends, because before I didn’t really have many friends. But gaming brought me to a space where I can relax, and I could be myself, because there’s not many places I could be myself on my own.”
The desire for companionship and comfort is a universal one—and I’m willing to bet that many of you reading this’ve probably gained similar things from gaming communities, even without a condition like Gohil’s. For him, the custom setup that allowed him to play again was a lifeline to stay a part of that community. “Access to the right controller makes such a difference to people, and I think everybody can be given the opportunity to enjoy gaming.”
‘I wonder how many people can’t take that step’
(Image credit: Netflix)
Liam Quinn, 34, lives with Spinal Muscular Atrophy (SMA) type three. He’s recently started working with Muscular Dystrophy UK, and met his wife, Ana, while playing World of Warcraft.
I’m delighted to report that Quinn met Ana when he flamed someone for sucking terribly during a dungeon finder queue, like a true WoW patriot. You really can find love anywhere. “I had a bad night, where I didn’t sleep, and I went online at like 4am. I was in a really bad mood, wasn’t being that nice to people in the dungeon—for some reason that didn’t put Ana off.
“Ana was tanking, so I was like, ‘would you like to stay in the group and we can carry on going?'” A new dungeon group never came, leaving them talking to the wee hours of the morning, a friendship that would eventually grow into a deep affection.
You don’t know what the collateral of that can do to someone.“Liam Quinn, Muscular Dystrophy UK
You don’t know what the collateral of that can do to someone.”
While it was a smaller roadbump, Quinn had almost the exact same experience play out in the early days of his and Ana’s relationship. Ana explains: “At the end of December, early January, I actually had an opportunity to come and work in England. At this point I didn’t know he was in a wheelchair, so I told him, ‘I’m coming to England, will you come and meet up with me?’ And he was like, ‘no’.”
Despite the fact that Quinn never roleplayed—never took on a secondary persona with his character—he still felt that same anxiety around telling Ana about his condition: “There was still a shield from the game, like I still could sit behind that and just exist without it mattering.
“Very quickly after I said ‘no’, I was like ‘that wasn’t right’ and turned that around, and did tell [her], and did talk about it. But that step to say it when you haven’t before, that’s conflicting, because you also feel like: ‘Have I been a liar? Like, am I not telling the truth? Has it been relevant? Should I have had to?’ And you don’t really know how to navigate that. That’s hard.”
This really is a place where acceptance, normalisation, and a little bit of understanding from people written large can help. As Quinn puts it, “I wonder how many people can’t take that step. They can’t say, ‘oh, I am [disabled] and this is me’, and just be honest with it. And you don’t know what the collateral of that can do to someone.”
The people with these conditions need treatment and research funding, true—but they also need community and connection, and if a bespoke controller setup, a simple options toggle, or even just a bit of patience and understanding can get them there, then that’s the smallest of prices to pay. You can donate toMuscular Dystrophy UK here.
TOPICSBlizzard Entertainment
TOPICS
More about world of warcraftWoW’s finally upgrading its dreaded swirlies so players can actually tell where it’s safe to stand’Game has become mahjong’: WoW Classic player installs over 3,600 addons in a bout of eldritch madness, somehow only needs to remove 20 to get it to ‘work’LatestHarrowing report alleges years of horrific abuse at Brandoville Studios, an Indonesian support studio that worked on Assassin’s Creed Shadows and The Last of Us RemakeSee more latest►
More about world of warcraftWoW’s finally upgrading its dreaded swirlies so players can actually tell where it’s safe to stand’Game has become mahjong’: WoW Classic player installs over 3,600 addons in a bout of eldritch madness, somehow only needs to remove 20 to get it to ‘work’LatestHarrowing report alleges years of horrific abuse at Brandoville Studios, an Indonesian support studio that worked on Assassin’s Creed Shadows and The Last of Us RemakeSee more latest►
More about world of warcraftWoW’s finally upgrading its dreaded swirlies so players can actually tell where it’s safe to stand’Game has become mahjong’: WoW Classic player installs over 3,600 addons in a bout of eldritch madness, somehow only needs to remove 20 to get it to ‘work’
More about world of warcraft
WoW’s finally upgrading its dreaded swirlies so players can actually tell where it’s safe to stand’Game has become mahjong': WoW Classic player installs over 3,600 addons in a bout of eldritch madness, somehow only needs to remove 20 to get it to ‘work’
WoW’s finally upgrading its dreaded swirlies so players can actually tell where it’s safe to stand
WoW’s finally upgrading its dreaded swirlies so players can actually tell where it’s safe to stand
‘Game has become mahjong’: WoW Classic player installs over 3,600 addons in a bout of eldritch madness, somehow only needs to remove 20 to get it to ‘work’
‘Game has become mahjong’: WoW Classic player installs over 3,600 addons in a bout of eldritch madness, somehow only needs to remove 20 to get it to ‘work’
LatestHarrowing report alleges years of horrific abuse at Brandoville Studios, an Indonesian support studio that worked on Assassin’s Creed Shadows and The Last of Us RemakeSee more latest►
Latest
Harrowing report alleges years of horrific abuse at Brandoville Studios, an Indonesian support studio that worked on Assassin’s Creed Shadows and The Last of Us Remake
Harrowing report alleges years of horrific abuse at Brandoville Studios, an Indonesian support studio that worked on Assassin’s Creed Shadows and The Last of Us Remake
Harrowing report alleges years of horrific abuse at Brandoville Studios, an Indonesian support studio that worked on Assassin’s Creed Shadows and The Last of Us Remake
See more latest►
Most PopularThe most important tool in Remedy’s new co-op FPS is the shower: ‘Saving water is essential’If you missed it over the holidays, this noir Half-Life 2 mod turns you into a hardboiled detective in Prohibition-era ChicagoPath of Exile 2 players are calling foul on Elon Musk’s high-level hardcore character after he streams his struggles with core game mechanicsAlan Emrich, the game designer and writer who coined the term ‘4X,’ has diedTrack down a missing person in this ‘Geoguessr-inspired detective game’ set on an alien planetOld meets new as classic MMO players worship a famous Vtuber via gifts of bones so she can max out the Prayer skillHyper Light Breaker will cost $30 and for a limited time come with a free copy of DrifterFallout season 2 filming delayed due to massive LA firesAssassin’s Creed Shadows is delayed again ‘to better incorporate player feedback gathered over the past three months’The Freewrite Wordrunner with a built-in word counter might be the keyboard to look out for if you want to improve your writing process’I created it, let me move on’: Ex-Cloud 9 player, the Overwatch team whose blunder inspired the infamous ‘C9’ slang, watches in horror as the term moves onto Marvel Rivals
Most PopularThe most important tool in Remedy’s new co-op FPS is the shower: ‘Saving water is essential’If you missed it over the holidays, this noir Half-Life 2 mod turns you into a hardboiled detective in Prohibition-era ChicagoPath of Exile 2 players are calling foul on Elon Musk’s high-level hardcore character after he streams his struggles with core game mechanicsAlan Emrich, the game designer and writer who coined the term ‘4X,’ has diedTrack down a missing person in this ‘Geoguessr-inspired detective game’ set on an alien planetOld meets new as classic MMO players worship a famous Vtuber via gifts of bones so she can max out the Prayer skillHyper Light Breaker will cost $30 and for a limited time come with a free copy of DrifterFallout season 2 filming delayed due to massive LA firesAssassin’s Creed Shadows is delayed again ‘to better incorporate player feedback gathered over the past three months’The Freewrite Wordrunner with a built-in word counter might be the keyboard to look out for if you want to improve your writing process’I created it, let me move on’: Ex-Cloud 9 player, the Overwatch team whose blunder inspired the infamous ‘C9’ slang, watches in horror as the term moves onto Marvel Rivals
Most PopularThe most important tool in Remedy’s new co-op FPS is the shower: ‘Saving water is essential’If you missed it over the holidays, this noir Half-Life 2 mod turns you into a hardboiled detective in Prohibition-era ChicagoPath of Exile 2 players are calling foul on Elon Musk’s high-level hardcore character after he streams his struggles with core game mechanicsAlan Emrich, the game designer and writer who coined the term ‘4X,’ has diedTrack down a missing person in this ‘Geoguessr-inspired detective game’ set on an alien planetOld meets new as classic MMO players worship a famous Vtuber via gifts of bones so she can max out the Prayer skillHyper Light Breaker will cost $30 and for a limited time come with a free copy of DrifterFallout season 2 filming delayed due to massive LA firesAssassin’s Creed Shadows is delayed again ‘to better incorporate player feedback gathered over the past three months’The Freewrite Wordrunner with a built-in word counter might be the keyboard to look out for if you want to improve your writing process’I created it, let me move on’: Ex-Cloud 9 player, the Overwatch team whose blunder inspired the infamous ‘C9’ slang, watches in horror as the term moves onto Marvel Rivals
Most Popular
The most important tool in Remedy’s new co-op FPS is the shower: ‘Saving water is essential’
If you missed it over the holidays, this noir Half-Life 2 mod turns you into a hardboiled detective in Prohibition-era Chicago
Path of Exile 2 players are calling foul on Elon Musk’s high-level hardcore character after he streams his struggles with core game mechanics
Alan Emrich, the game designer and writer who coined the term ‘4X,’ has died
Track down a missing person in this ‘Geoguessr-inspired detective game’ set on an alien planet
Old meets new as classic MMO players worship a famous Vtuber via gifts of bones so she can max out the Prayer skill
Hyper Light Breaker will cost $30 and for a limited time come with a free copy of Drifter
Fallout season 2 filming delayed due to massive LA fires
Assassin’s Creed Shadows is delayed again ‘to better incorporate player feedback gathered over the past three months’
The Freewrite Wordrunner with a built-in word counter might be the keyboard to look out for if you want to improve your writing process
‘I created it, let me move on’: Ex-Cloud 9 player, the Overwatch team whose blunder inspired the infamous ‘C9’ slang, watches in horror as the term moves onto Marvel Rivals
HARDWARE BUYING GUIDESLATEST GAME REVIEWS1Best Steam Deck accessories in Australia for 2025: Our favorite docks, powerbanks and gamepads2Best graphics card for laptops: the mobile GPUs I’d want in my next gaming laptop3Best mini PCs in 2025: The compact computers I love the most4Best 14-inch gaming laptop: The top compact gaming laptops I’ve held in these hands5Best Mini-ITX motherboards in 2025: My pick from all the mini mobo marvels I’ve tested1Thank Goodness You’re Here! review: An anarchic treasure trove of jokes and skits2Shiren the Wanderer: The Mystery Dungeon of Serpentcoil Island review—like juggling chainsaws on horseback3WD Black SN850X 8 TB NVMe SSD review4Ikea Utespelare desk review5Asus ROG Harpe Ace Mini wireless mouse review
HARDWARE BUYING GUIDESLATEST GAME REVIEWS1Best Steam Deck accessories in Australia for 2025: Our favorite docks, powerbanks and gamepads2Best graphics card for laptops: the mobile GPUs I’d want in my next gaming laptop3Best mini PCs in 2025: The compact computers I love the most4Best 14-inch gaming laptop: The top compact gaming laptops I’ve held in these hands5Best Mini-ITX motherboards in 2025: My pick from all the mini mobo marvels I’ve tested1Thank Goodness You’re Here! review: An anarchic treasure trove of jokes and skits2Shiren the Wanderer: The Mystery Dungeon of Serpentcoil Island review—like juggling chainsaws on horseback3WD Black SN850X 8 TB NVMe SSD review4Ikea Utespelare desk review5Asus ROG Harpe Ace Mini wireless mouse review
HARDWARE BUYING GUIDESLATEST GAME REVIEWS1Best Steam Deck accessories in Australia for 2025: Our favorite docks, powerbanks and gamepads2Best graphics card for laptops: the mobile GPUs I’d want in my next gaming laptop3Best mini PCs in 2025: The compact computers I love the most4Best 14-inch gaming laptop: The top compact gaming laptops I’ve held in these hands5Best Mini-ITX motherboards in 2025: My pick from all the mini mobo marvels I’ve tested1Thank Goodness You’re Here! review: An anarchic treasure trove of jokes and skits2Shiren the Wanderer: The Mystery Dungeon of Serpentcoil Island review—like juggling chainsaws on horseback3WD Black SN850X 8 TB NVMe SSD review4Ikea Utespelare desk review5Asus ROG Harpe Ace Mini wireless mouse review
HARDWARE BUYING GUIDESLATEST GAME REVIEWS1Best Steam Deck accessories in Australia for 2025: Our favorite docks, powerbanks and gamepads2Best graphics card for laptops: the mobile GPUs I’d want in my next gaming laptop3Best mini PCs in 2025: The compact computers I love the most4Best 14-inch gaming laptop: The top compact gaming laptops I’ve held in these hands5Best Mini-ITX motherboards in 2025: My pick from all the mini mobo marvels I’ve tested1Thank Goodness You’re Here! review: An anarchic treasure trove of jokes and skits2Shiren the Wanderer: The Mystery Dungeon of Serpentcoil Island review—like juggling chainsaws on horseback3WD Black SN850X 8 TB NVMe SSD review4Ikea Utespelare desk review5Asus ROG Harpe Ace Mini wireless mouse review
HARDWARE BUYING GUIDESLATEST GAME REVIEWS
1Best Steam Deck accessories in Australia for 2025: Our favorite docks, powerbanks and gamepads
1Best Steam Deck accessories in Australia for 2025: Our favorite docks, powerbanks and gamepads
1
Best Steam Deck accessories in Australia for 2025: Our favorite docks, powerbanks and gamepads
2Best graphics card for laptops: the mobile GPUs I’d want in my next gaming laptop
2Best graphics card for laptops: the mobile GPUs I’d want in my next gaming laptop
2
Best graphics card for laptops: the mobile GPUs I’d want in my next gaming laptop
3Best mini PCs in 2025: The compact computers I love the most
3Best mini PCs in 2025: The compact computers I love the most
3
Best mini PCs in 2025: The compact computers I love the most
4Best 14-inch gaming laptop: The top compact gaming laptops I’ve held in these hands
4Best 14-inch gaming laptop: The top compact gaming laptops I’ve held in these hands
4
Best 14-inch gaming laptop: The top compact gaming laptops I’ve held in these hands
5Best Mini-ITX motherboards in 2025: My pick from all the mini mobo marvels I’ve tested
5Best Mini-ITX motherboards in 2025: My pick from all the mini mobo marvels I’ve tested
5
Best Mini-ITX motherboards in 2025: My pick from all the mini mobo marvels I’ve tested
1Thank Goodness You’re Here! review: An anarchic treasure trove of jokes and skits
1Thank Goodness You’re Here! review: An anarchic treasure trove of jokes and skits
1
Thank Goodness You’re Here! review: An anarchic treasure trove of jokes and skits
2Shiren the Wanderer: The Mystery Dungeon of Serpentcoil Island review—like juggling chainsaws on horseback
2Shiren the Wanderer: The Mystery Dungeon of Serpentcoil Island review—like juggling chainsaws on horseback
2
Shiren the Wanderer: The Mystery Dungeon of Serpentcoil Island review—like juggling chainsaws on horseback
3WD Black SN850X 8 TB NVMe SSD review
3WD Black SN850X 8 TB NVMe SSD review
3
WD Black SN850X 8 TB NVMe SSD review
4Ikea Utespelare desk review
4Ikea Utespelare desk review
4
Ikea Utespelare desk review
5Asus ROG Harpe Ace Mini wireless mouse review
5Asus ROG Harpe Ace Mini wireless mouse review
5
Asus ROG Harpe Ace Mini wireless mouse review
